October 25, 2012
I was diagnosed 24 years ago when my son was born. It was tough to be a young woman with a scary and disfiguring disease. To have a group like this that helps educate and support such a lifelong illness is too hard to put into words. I am still learning about my disease and receiving support for the hurdles I come across many years later. This group reaches out to families as well. All I can say is thankyou from the bottom of my heart.
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MY ROLE:General Member of the Public