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ACRO

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ACROMEGALY COMMUNITY INC
October 25, 2012

At the age of 30, a year after having my second child, I was diagnosed with Acromegaly. My mind filled with fear and my body was being overtaken by anxiety. My doctors told me that this pituitary tumor was not going to kill me because I was diagnosed and was being treated but that my anxiety would kill me if not controlled. A few years later I found what is now called Acromegaly Community. The one thing I credit this community for, is for controlling my anxiety and saving my marriage. I say this with caution as I know only two people can save a marriage and that is the people in it, but I was reminded when I shared my story of how blessed I was to have a husband that stuck with me through my pre-diagnosis suffering when my moods were a complete mess, through diagnosis/treatment and is still now by my side 10 years later. It is critical for people to realize the toll any medical diagnosis can take on relationships. I finally stopped pushing my husband away and realized he was trying to help me though this tough time, simply in his own way. I was reminded I was blessed to have my husband and my family. I was never alone in this battle. My second support system, Acromegaly Community, allowed me to focus more on my family instead of letting anxiety control my life. The people I met though this community wanted to brainstorm and discuss the issues that were the most critical to explore. I was able to "work" with this group and then just be there as a wife and mother for my family. Prior to finding this non-profit organization I was researching all the time, talking about my condition all the time. Knowledge and understanding was all of a sudden provided to me by my new network of friends that could relate on the most personal level to the issues in life that a Pituitary Tumor producing excess Growth Hormone creates. These issues are softened with kindness, understanding and most of all friendship. Even when treatments are not working for some, I know that simply having a friend suffering with the same condition can be the best medicine of all.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Client Served