October 8, 2012
I found ACHA after the death of my son who was an adult with congenitalfrom heart defects. I think that if I'd known about the organization before, he'd still be alive. The wealth of accurate information from ACHA is invaluable. The ACHA is truly a lifeline for this large population of people that have very little access to accurate, relevant information. The organization is outstanding in it's scope of advocating for the broad needs of this community, from informational support, emotional support, to lobbying and educating our lawmakers in order to obtain much needed funding for the chd population.
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MY ROLE:Client Served