Hello,i am from india.my son is suffering from leigh disease.i and my husband are students.we are sending samples for molecular level testing.will we get any help for treatment

Hello ,i am from india.my son is 1 year old now.he was diagnosed with leigh's disease when he was 4 monyh old.shortly after that he stopped crying,smiling and recognizing us.for two months after that he was on thiamine iv and he had lot of pricks .we made friends with many parents whose babies were in same coondition.now we arre looking forward to go for trial,but molecular diagnosis is neede we dont have that.me and all others around the globbe pray that some medicine will be developed by some ome around the globe to save little ones from endless suffering