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vinu

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NATIONAL LEIGHS DISEASE FOUNDATION
October 3, 2012

Hello,i am from india.my son is suffering from leigh disease.i and my husband are students.we are sending samples for molecular level testing.will we get any help for treatment

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

MY ROLE:
General Member of the Public

United Mitochondrial Disease Foundation Inc.
October 3, 2012

Hello ,i am from india.my son is 1 year old now.he was diagnosed with leigh's disease when he was 4 monyh old.shortly after that he stopped crying,smiling and recognizing us.for two months after that he was on thiamine iv and he had lot of pricks .we made friends with many parents whose babies were in same coondition.now we arre looking forward to go for trial,but molecular diagnosis is neede we dont have that.me and all others around the globbe pray that some medicine will be developed by some ome around the globe to save little ones from endless suffering

More feedback

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

MY ROLE:
General Member of the Public

Review from The Pittsburgh Foundation