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rgoodman

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1 reviews

Review for International Rett Syndrome Foundation, Cincinnati, OH, USA

Rating: 1 stars  

Trying to find out any information about this foundation is practically impossible from the IRSF website - it's unbelievable that their Annual Report and 990 have not been updated since 2010!

Will you volunteer or donate to this organization?

Unlikely

How much of an impact do you think this organization has?

Some

When was your last experience with this nonprofit?

2012

Role:  General Member of the Public
pnues (Nonprofit Staff) wrote:

Dear rgoodman, thank you for alerting us to this oversight. Our 2011 forms are now posted to the website. We are a small handful of people working intensively to accelerate research and support families. We operate transparently and with integrity, and with the support of scores of volunteers, mostly family members of a child with Rett syndrome, who are proud to represent our organization, and believe in our mission. Every phone call or email is answered promptly. We invite you to contact us directly with any question you may have, at any time. Sincerely, Paige Nues, Director, Family Support, IRSF