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Review for Propionic Acidemia Foundation, Highland Park, IL, USA

Rating: 5 stars  

My family has been affected by Propionic Acidemia since 2010. We have two small children born with this life-threatening illness and every day since we received that call each has been filled with fear, worry, doubt, and grief. I immediately researched all that I could about this disorder and found the Propionic Acidemia Foundation (PAF) I emailed the site and received a call back just hours later. I have met some very special people that are in the same unfortunate situation like my family. Even though my days are filled with emotions I can look to my new friends to help educate us and provide us with hope and purpose. The PAF is a wonderful organization which is run by resilient families and I would recommend this foundation to anyone looking for help and support. Thank you PAF we are forever grateful -Sincerely, The Russell Family

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Role:  Donor