August 21, 2012
I cannot imagine being a part of an organization which has more direct impact on its mission, than Cure JM. All Board Members are actively involved in raising awareness and funds for a cure. We work diligently to make sure all our support is transparent and that all our funds go to awareness and research for a cure. This is the only organization devoted solely to this rare disease, Juvenile Myositis. Our son, 25, was diagnosed at age 11. Today he is in remission. All JM children aren't as lucky. They often aren't diagnosed properly or readily or treated as aggressively as this disease requires. Cure JM's goals also include educating the scientific community so children can be diagnosed and treated immediately. We reach out to the JM community to help with awareness, to support more research and ultimately to find a cure.
Will you volunteer or donate to this organization beyond what is required of board members?
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MY ROLE:Board Member