August 15, 2012
We count on them to send the info we need to educate doctors and newly diagnosed patients in our local support groups. (This is a disease called "rare" which is clearly much more prevalent and usually misdiagnosed for decades up to and including death. Educating MDs will save lives and educating patients will change imminent death to a long life with a manageable chronic disease.)
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?