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patti e

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Alagille Syndrome Alliance
August 11, 2012

We were devastated and scared when we learned our newborn son had a rare liver disease. In 1995 there was almost no information about Alagille Syndrome (ALGS) on the internet. Finding the Alliance gave us hope. With their help we were able to connect with other ALGS families, learn more about ALGS and find doctors familiar with ALGS. Our 17 year ALGS journey has been so much less of a struggle because of the friends we have made and the support we have found through the Alliance.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served