August 2, 2012
My daughter was diagnosed in 2004. She was one of the lucky ones as we received a diagnosis within 1 week of her severe symptoms. As a health care professional, it was easier for me to navigate the medical system, thus seeking a 2nd opinion and treatment with one of the leading experts in juvenile myositis (JM). Within months, I became aware of The Cure JM Foundation and began to volunteer. I was moved to action knowing that Cure JM was led by volunteers with the mission of raising funds to support JM research, with almost all monies going to research. We fund 2 centers of excellence in JM Research and have awarded several grants to individuals/institutions studying various aspects of JM. We continue to offer support and educate the public about JM. In addition, we have organized and sponsored free conferences for the medical community led by the leading experts in the field in hopes of providing cutting edge knowledge to those most likely to treat our children with this rare disease. Please consider supporting our cause.
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MY ROLE:Board Member