My Nonprofit Reviews
Review for Cure Jm Foundation, Encinitas, CA, USA
When my daughter was diagnosed with Juvenile Dermatomyositis, we never heard of this rare life threatening disease (or could pronounce it). Contacting Cure JM for vital information and connections with others who children are fighting the same has helped and continues to help us through this journey towards remission. The Volunteer board is willing and always helpful when a question or stressful situation occurs; I rely on their knowledge and appreciate their eagerness to help. My family would be lost (as we only know 7 other families in Canada with this rare disease) and the stress would be so much higher without the support of Cure JM. I thank them for their endless dedication working towards a cure for all the JDM children.
I've personally experienced the results of this organization in...
by the information they give and connections to others with this rare disease of JDM.
If I had to make changes to this organization, I would...
nothing - they are amazing with getting up todate reasearch information out to all JDM families.
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
When was your last experience with this nonprofit?
How did you find this group?
Search on the internet, and Rheumatologist Specialist recommended..
What, if any, change in your life has this group encouraged?
Always be informed, be connected with others, and live a healthy lifestyle. Continue working towards a cure.