My Nonprofit Reviews

Frank11 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Frank11

64 profile views
1 reviews

Review for MELANOMA INTERNATIONAL FOUNDATION, Glenmoore, PA, USA

Rating: 5 stars  

I received news within the last six weeks that I have Stage IV melanoma. This has been a most shocking revelation, completely out of the blue, without previous or current other evidence of disease than a tumor on my lung. Such a diagnosis raises innumerable large questions, and, though some of these can be answered by doctors, they are not always there to answer them at the time they arise, not prompt about getting back to patients, and sometimes overwhelming one in a short period of time with information that needs sorting if it is going to be of any use. Besides, in a disease that is as individualized in diagnosis and potential treatment, to what doctor does one go to get the best care? With all these questions and concerns, I have found the one strong and safe refuge through these weeks has been the International Melanoma Foundation, most specifically its forums that have allowed me to interact with and learn from others in my situation who are further along in their journey, and through this and phone and email contact with its most knowledgeable and incredibly available and deeply caring head, Catherine Poole. I dont even want to imagine how much more difficult the road would have been so far without this amazing resource. I cannot praise it and Catherine's guiding hand enough. Just in the past day, I was faced with the stunning news that my cancer may have spread from lung to brain, on the basis of an ambivalent MRI reading. After numerous unsuccessful attempts to contact my oncologist or his office, I turned to MIF and received excellent advice and support from fellow Forum members and Catherine herself that have helped me make good decisions about steps forward and put mind and emotions at ease as I write this, both mine and my wife's. I am so grateful.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

A random hunt online

What, if any, change in your life has this group encouraged?

Being more hopeful about the future and being proactive about sharing my questions and concerns and not taking one doctor's opinion with more gravity than it is worth.

Role:  Client Served & I sought support and advice from staff and other melanoma patients through involvement in the organization's onnline Forum.