My Nonprofit Reviews

ckennedy - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

ckennedy

177 profile views
1 reviews

Review for Alagille Syndrome Alliance, Tualatin, OR, USA

Rating: 5 stars  

As a life science professional with the goal of developing treatments for patients organizations like the Alagille Syndrome Alliance are the key to bringing new treatments to patients. The alliance is not only focused on supporting patients and families in managing their condition but also focused on helping the life science community understand this disease and working together to provide funding for research and supporting research in many other ways. Often times it is organizations like the Alagille Syndrome Alliance that act as the collective voice of Alagille patients and families across the country that help make new therapies a reality.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Professional with expertise in this field