i can't think of anything in life that prepares you for the shock that is experienced when your child is diagnosed with a life threatening condition. CCF was our primary resource for learning...oh wait, life does go on with this disease, there is a normalcy that will return to our lives. CCF was our connection to both information to understand all of the new medical terminology we needed to be well versed in, but also, and perhaps most importanly, connecting us to other families that have direct experience with our medical needs/questions, thereby allowing us to feel not so alone in our new life circumstance. CCF has been a huge benefit to us, and run so efficiently and respectfully. Thank you CCF!