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Barbara64

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SADS (Sudden Arrhythmia Death Syndromes) Foundation
June 28, 2012

When we lost our daughter suddenly to a previously undetected heart arrhythymia on June 20,2005, we had no where to turn. Because long qt is such a rare disorder there was little support for those afflicted. While searching the internet we came across the SADS website. We have found that SADS has a wealth of information and reaches out to those who suffer a loss such as ours. We have also attended some of their conferences and have learned so much from their knowledgeable experts. We feel SADS is such a valuable organization and have held an annual fundraiser with proceeds going to them since 2006 to help raise awareness. Our fundraiser is called Christie's Heartoberfest. We have rasied over $100,000 for SADS and will continue to do so in the future.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served