June 28, 2012
When my son was diagnosed with a genetic heart problem that we now know affects both my daughter and I, SADS was there. They had been there before we knew it by supporting research into our condition. They had educational resources that let us understand our condition better. They had forms to use for school and other care givers. They helped us work through the insurance issues of genetic testing that our insurer would not agree to fund at first. Later, when my daughter had to have an ICD implanted for this condition, the contacts helped us develop kept us calm and supported us through the surgery. I am very grateful for SADS.
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MY ROLE:Client Served