My Nonprofit Reviews
Review for SADS (Sudden Arrhythmia Death Syndromes) Foundation, Salt Lake City, UT, USA
When my son passed away from fainting spells that went undiagnosed by specialist after specialist, it was only after his death that we learned of www.SADS.org. They were kind enough to respond to our need for answers as to WHY he passed away. They referred us to doctors who reviewed my sons medical records gratis and confirmed that he was afflicted with SADS, and that if he had been diagnosed correctly he would still be alive today. Because their wonderful responsive team was able to help us so much to find closure, our family has joined the cause as volunteers to help spread the word throughout the medical and acedemic community, to educate, inform, and help to save others lives. We take great joy in knowing that we are helping to support them in saving others from this horrible life taking affliction.
I've personally experienced the results of this organization in...
so many ways. They work so hard to give and help others. They have offered counseling, insight, understanding and an opportunity to get involved in fund raising, awareness events, and meetings with families trying to learn to live with the affliction or come to grips with their loss.
If I had to make changes to this organization, I would...
help them by giving myself to them full time.
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?
What one change could this group make that would improve your volunteer experience?
Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)
It has been profound
How did this volunteer experience make you feel?
That we can all make a difference in saving lives. Because of them, I speak to people every week who want to hear about my personal experience. Many of them know someone who is passing out and we are able to refer them to SADS and potentailly save their lives.