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Tracy22

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1 reviews

Review for SADS (Sudden Arrhythmia Death Syndromes) Foundation, Salt Lake City, UT, USA

Rating: 5 stars  

I first became aware of the SADS organization almost 3 years ago now. My daughter, Morgan, then 12 years old, had a syncope episode that landed her a trip to the emergency room where it was discovered she may have Long QT. Thankfully, there was someone that quickly referred me to the SADS organization. To say they changed my life, and that of my daughter, would be an understatement. At a time in my life when I felt so incredibly lost and scared, SADS was right there with me to offer support, a listening ear, a shoulder to cry on, resources, referrals and so much more. SADS has connected us with other families, living with SADS conditions that I've gleaned support and encouragement from. Day or night, the middle of the night, the early morning, it didn't matter. The SADS organization was there for me. They always answered their phones, promptly returned phone calls, answered e-mails and even gave me their own personal cell phone numbers in case I needed anything. I never once felt like I was an inconvenience or wasn't cared for. SADS has stuck by me, daily sometimes, for the last 3 years. As we are still seeking help for Morgan, SADS continues to stand by me. They have been there through my tears, trips to the hospital, and the happy times as well. I've had the pleasure of meeting some of the SADS staff when they took time out to meet with Morgan and I while visiting our area. Just recently, the SADS organization put me in contact with an AED machine company. The church my daughter and I attend wanted to purchase an AED but didn't have the funds to do so. Ms. Laura Wall from SADS connected me with a wonderful company that donated an AED machine to our church. It's comforting to know that we have that resource not only just for Morgan, but others. As we still seek answers to Morgan's condition, I know without a doubt that SADS will be right there with us. My children and I are so passionate about this organization that we spread the word every where we go. We've both done school projects on SADS, made speeches, passed out material and raised awareness to the best of our ability. We are currently working on a fundraising project in our town, with all the donations going to SADS. There are so many wonderful things that I could say about the SADS organization and use every opportunity possible to do so. I will always, with passion, work to spread their cause, raise awareness and do all I can to help them in their endeavor to save lives. I have already had the opportunity to refer others, going through scary situations with themselves for their children, to SADS. This organization, will without a doubt, always have my heart. As they have stood by me, so I too will always stand by them as well as the lives they touch.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served