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SADS (Sudden Arrhythmia Death Syndromes) Foundation
October 16, 2012

The SADS Foundation has been an integral part of my healing from the unexpected loss of my husband and the care of my daughter. They are extremely dedicated to the individuals and families they support, and their passion for their cause, saving lives and supporting survivors is boundless. We appreciate everything they have done for our family, and they have inspired us to work hard for the cause & community as well.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Volunteer

SADS (Sudden Arrhythmia Death Syndromes) Foundation
June 27, 2012

On September 29, 2009 I unexpectedly lost my husband and my daughter lost her father exactly 1 month after her 3rd birthday. We soon learned that Wayne had an undiagnosed genetic heart condition called Long QT Syndrome. Since losing him, our family has learned that other family members have Long QT as well, including our daughter, Lily. And, sadly, we learned that Wayne's death was preventable.

We are so fortunate to be connected with the SADS Foundation, as they have been a compassionate source of support and expertise in the field of genetic heart arrhythmia syndromes. Not only do I feel comfortable with the information they give us, but I feel like I have understanding friends to whom I can simply talk to when in sorrow or fear. As a way to give back and further advance their efforts, I've chosen to volunteer on behalf of the Foundation. Each year we host a celebration of life in Wayne's memory in an effort to raise critical funding and awareness for Long QT Syndrome and other SADS conditions. These events have been a tremendous source of personal healing, as well as raising significant funding & awareness. My life & the way I've dealt with the loss of my husband is dramatically different in a positive way as a result of the SADS Foundation and their incredible staff.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Volunteer