June 20, 2012
FAST is a wonderful organization that helps spread awareness and raise money for research for Angelman Syndrome. Without their help and generosity, our Angelman community would not have the hope for a better and brighter future. Awareness is the key as many do not know about AS, and do not know the physical hardships those with AS nave. Without awareness, there would be fewer resources to help fund research necessary for better treatments for seizures and cognitive delays. As a parent of a child with AS, I hope that someday my daughter will be free from seizures, and that someday she will have a voice of her own.
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MY ROLE:General Member of the Public