May 17, 2012
The CFIDS Association of America (CAA) is, without a doubt, the leading advocate for ME/CFS research in the world, and the folks who work for the Association work tirelessly at fighting for patients, campaigning for research projects, and providing helpful treatment and management tips for patients. It is the longest-serving advocacy group for CFS patients, and its track record is undeniable. The Association's leadership is unmatched, and I challenge anyone who disagrees to try to build the rock-solid foundation upon which the CAA stands. The Association has been successful in funding important and dynamic research projects which will undoubtedly lead someday to a complete public understanding of CFS and at least a reliable treatment plan. Its commitment to research is one of its best qualities, and the CAA has done very well to reach out to some of the best medical and scientific minds working on the ME/CFS case. It is also a poverty that so many reviewers feel that they have been brushed aside by the Association. They are the leading advocate for CFS patients, and the CEO works 50-60 hour weeks to make sure progress is made on all fronts in the fight against CFS. With countless newsletters and sources of information for those who are interested in or suffering from CFS, the CAA has done an outstanding job of keeping its supporters filled in on where donations are going and informing them about what the medical community is saying about the disease. It is understandable that so many people are upset that their lives have been turned upside-down by ME/CFS, but with the Association’s mission to use science and research as the main weapons against the disease, there will be progress. Libels and slanders against the Association does nothing except weaken the cause for which the CAA fights, and it’s the same cause that everyone who has experienced the quiet destruction of chronic fatigue fights for: eliminating CFS.
Will you volunteer or donate to this organization?
How much of an impact do you think this organization has?
When was your last experience with this nonprofit?
MY ROLE:General Member of the Public