ACHA has raised my awareness for the need of this specialized care. Because of ACHA I was able to learn of the most common and serious complication of my heart defect. When I experienced one of these complications I acted quickly and call the paramedics. The doctors said my fast action saved my life. ACHA help save my life. I also saw an Adult Congenital Specialist this year. This will again change my life. My former "regular" cardiologist was satisfied with my activity intolerance and told me I was doing fine. He gave me no explanation for it. My ACHD Dr. found a leaky pulmonary valve. I will have surgery this year. I will be able to RUN with my grandchildren. Truly Lifechanging!