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Frances H.

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Des Action USA
November 7, 2012

When my mother told me her doctor had prescribed her diethylstilbestrol (DES) to prevent a miscarriage while pregnant with me I was stunned and wanted to learn more. Finding DES Action USA was such a relief because it provides accurate information about DES exposure. It also helps me know that I'm not alone. Millions of Americans have been harmed by DES but you can't look at someone and see the damage. It's primarily in our reproductive systems leading to a specific type of vaginal/cervical cancer, infertility and breast cancer among other issues. Learning about DES explained a lot about what has happened to me through the years. Now researchers are looking into the possibility that so-called DES Grandchildren may have health problems relating to this drug prescribed to their grandmothers! I trust the information provided by DES Action, which pushes for continued DES research and informs those of us who should know about special health screenings to protect our health. Where else would I turn for information if DES Action didn't exist? I was so pleased with this small organization that I got involved!

More feedback

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Board Member