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KarenK

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HEMOPHILIA ASSOCIATION OF THE CAPITAL AREA
January 24, 2012

The Hemophilia Association of the Capital Area (HACA) serves individuals in the Washington, DC Metro area - to include all of DC, Northern Virginia and two counties in Maryland. I have been involved with the organization for the past three months and am pleased to report that this is a worthy charity. The organization is staffed by two part time individuals and housed in an office in Fairfax. During this time I have learned much about hemophilia and other bleeding disorders. For example, did you know that medications for those with hemophilia while covered by insurance still cost families between $150,000 and $600,000 per year - depending on the severity of the condition. Can you imagine having to pay those sorts of costs to survive? (Lapse in insurance coverage is obviously not an option nor is a lapse in medication.) I also understand it is a very painful disease and left untreated can be debilitating. This is a very worthy charity as are all charities. But -- $1 given to this organization goes much further and has a much more direct impact on our community than that same $1 given to one of the mega charities.

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When was your last experience with this nonprofit?

2012

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