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Corinneb

293 profile views
2 reviews

Review for VASCULAR BIRTHMARKS FOUNDATION INC, Latham, NY, USA

Rating: 5 stars  

My son was born with a vascular tumor across the right side of his face. With he support and help of the VBF, I found experts in the field that would do the best thing for my son. I joined the VBF to continue the mission of help other patients and families needing up to date information and support.

I've personally experienced the results of this organization in...

I have seen thousands of patients get networked into proper care! I have seen doctors show an interest in the field and get involved, learning from collegues and going back to their areas to help more patients. I have seen people come from all over the world to the conferences to get much needed diagnsis and treatment options. Without the VBF, many patients would be fall through the cracks and likely would not have the proper care

If I had to make changes to this organization, I would...

Make them a household name.

Role:  Board Member & Help other families find doctors and support in their areas.
 

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

1p36 Deletion Support & Awareness, thank you for all your work and dedication to helping the families.

I've personally experienced the results of this organization in...

Seeing how it has supported families

If I had to make changes to this organization, I would...

Have information about 1p36 Deletion Support & Awareness in every doctor's office and insurance co. website

Role:  General Member of the Public & I learned more about 1p36 Deletion Support & Awareness.