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International Rett Syndrome Foundation
November 17, 2011

IRSF has been instrumental in my families ability to cope with the diagnosis of our daughter with rett syndrome. Right from the start their knowledgable and supportive staff was there for us to ask questions and lean and get involved in fundraising. IRSF has a crucial role in raising money for research and family support. I jumped on board as a volunteer right away by chairing a local event here in CA. I am now serving as a regional rep for IRSF to help other families on this journey. IRSF is an AMAZING organization-one I dont know what we would do without~!

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