My Nonprofit Reviews
Review for Sjogrens Syndrome Foundation, Inc., Bethesda, MD, USA
I was diagnosed with Sjogren's at 15 (over a decade ago). Since that time, I have interacted with quite a few foundations, as a patient, health activist, and even professionally in my role as an auditor (my clients include not-for-profit organizations). I even plan to start my own foundation. In these experiences I've found the SSF to be among the elite - those organizations with novel ideas, a deep interest in the patients they represent, and worthy of my trust. I know every dollar I donate to or raise for the foundation is spent with the interests of the patients in mind, usually in support of research. Because of the foundation's grants, researchers who would have spent their time and talents on more 'popular' diseases have been brought into the Sjogren's world, and made desperately needed headway. The foundation further commits to supporting excellence in research and advancements by partnering with the top professionals in the world for this disease.
When was your last experience with this nonprofit?