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Radarsmom

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TRISOMY 18 FOUNDATION
September 28, 2011

I lost my beloved 1st son in October of 2007 after a Trisomy 18 diagnosis. I knew nothing about trisomy 18 and knew no one else that had walked this heartbreaking road. Through the Trisomy 18 Foundation, I found much more information than even my doctor could offer me and more importantly, I found a community of families that had walked in my shoes and could share and cry and heal with me. This is an organization that opens its arms to all families affected by trisomy 18, no matter the choices each family makes. Four years later, my heart is much healed, but I remain an avid supporter of this wonderful, selfless organization.

The Great!

I've personally experienced the results of this organization in...

Receiving information and support through my very painful and personal loss of a baby diagnosed with trisomy 18.

Ways to make it better...

If I had to make changes to this organization, I would...

I had to find this organization on my own. I wish that somehow doctors and other prenatal support groups would know of this foundation in order to direct patients and educate themselves as well.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Google search

When was your last experience with this nonprofit?

2011

MY ROLE:
Client Served & I received support and through their network was able to subsequently support other families. .