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Review for Endometriosis Association, Inc., Milwaukee, WI, USA

Rating: 5 stars  

As a disease, endometriosis is plagued by misinformation, taboo, and delayed diagnosis. There is no cure, the symtoms are often misunderstood, and many treatments have serious side effects. There are huge needs for patient advocacy and support to correct the multitudes of bad information out there, and the Endo Association fills that gap and more.
I first connected with the Endometriosis Association when I was diagnosed with the disease as a teenager and was spending most of my days in pain. I benefited from the Association's books and, as a member, I have learned a lot from their incredibly informative newsletters which also connected me to an international community of women with endo. The books are the BEST information out there on endo. After volunteering for EA, I recently joined the board and can say that, from the inside, the organization is even more impressive. EA is funding groundbreaking research, and has had its own groundbreaking discoveries, such as the first-time-ever research-proven link between dioxin and endo. Mary Lou Ballweg, the Executive Director, works tirelessly on behalf of women and girls with endo and in her time since founding the organization has producted amazing shifts in the way the disease is understood and treated. However, much more needs to be done! Get involved by joining as a member, reading a book by the Association, or being a donor:

Role:  Board Member & I wrote a newsletter article, am writing a patient guide, staffed a booth, and now I'm honored to join the board of directors as Recording Secretary.