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Carol C.

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Cranio Care Bears
September 18, 2011

My little boy Roan was diganoised with craniosynostosis when he was six weeks old. I can honestly say it was the hardest time of my life and had no knowlodge of this condition. It was Cranio Care Bears and all the people on this site that help me in so many ways. I managed to make contact with alot of people in my area in Australia and even got to meet up with them and share there stories over coffee. CCB educated me on craniosynostosis and answered every question I had. Even advised me on what to bring to the hospital etc. I also recieved a lovely care package the week before Roans surgery which brightend up my day. I got through this tough time in my life and we are now on the other side and I am prepared to help anyone who needs me now. Cranio Care Bears is a fantastic website and needs to get all the exposure it deserves. Many thanks to all involved.

The Great!

I've personally experienced the results of this organization in...

getting alot of support and educating me on a condition I had no knowlodge on .

Ways to make it better...

If I had to make changes to this organization, I would...

wouldnt change anything.

MY ROLE:
Volunteer & I got lots of advise from many people in my area. .