I've personally experienced the results of this organization in...
working with the staff at IRSF. I have volunteered in the office, and worked on various fundraising events. I have a daughter with Rett Syndrome who has been embraced by the office staff at IRSF.
Ways to make it better...
If I had to make changes to this organization, I would...
Continued awareness of Rett Syndrome and what IRSF is doing to raise funds for Research to find treatments and a cure. The treatments and cure for Rett Syndrome will benefit many other disorders.
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
How did you find this group?
They found us. They contacted us 10 years ago when our daughter was first diagnosed.
What, if any, change in your life has this group encouraged?
I have received support, continued educational information and a place to go to try to make life better for my daughter.
When was your last experience with this nonprofit?