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Myelin Repair Foundation
August 19, 2009

This is an amazing non-profit organization--the epitome of how non-profits should be. 84% of the money that comes in goes to research (compared to the National MS Society's 15-20%). Also, their collaborative ARC model breaks down barriers in the drug development process, which I believe will help them get to their goal of providing the world w/ MS treatments AND will influence the medical research field by making collaborative progress a norm instead of nonexistent.

The Great!

I've personally experienced the results of this organization in...

The support network they've already gathered. Being small, its been through the hope they've inspired and the extraordinary accomplishments/goals they've met in so little time (research tools/drug targets).

Ways to make it better...

If I had to make changes to this organization, I would...

continue the MRF's mission and find new ways to get to its goal faster and more efficiently.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

The people here inspire just by being in their presence. They are all (multi)talented and are very sincere about their goals. I've been asked to do so many different things and have used and learned many different skills.

The kinds of staff and volunteers that I met were...

The staff and volunteers were all genuine and were all only interested in finding new ways to efficiently meet the organization's goals. I've never met so many talented and diversified problem solvers. They were kind, personable and motivated.

If this organization had 10 million bucks, it could...

It would find a treatment for Multiple Sclerosis--not fiddle away most of it to pay off costs and bureaucrats.

Ways to make it better...

meh. couldn't have been better, really.

In my opinion, the biggest challenges facing this organization are...

Since it's so small compared to orgs like the National MS Society, it needs to continue to get its name and mission heard across all boards so that money that wants to go towards real, drug therapy driven research, can get where its needed most.

One thing I'd also say is that...

This experience has been so valuable for me. I've never before understood the non-profit and medical research world as much as I do now, and I know that what hte Foundation has taught me will continue to reverberate through much of my life. Thanks MRF!

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & I helped the Internet strategy manager as a community liason by building awareness and engaging different audiences via different tools and mediums.