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Frank V.

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1 reviews

Review for International Myeloma Foundation, North Hollywood, CA, USA

Rating: 4 stars  

I was diagnosed almost 9 years ago, and over 5 years ago started a Multiple Myeloma Support group. During that time the IMF has been a wonderful source of information about MM and treatments/drugs and clinical trials available.

This has been very valuable in understanding my own treatment options and providing information and contacts to others with Multiple Myeloma.

I'm happy to see local events Like the Patient and Family Seminar being held in Minnesota, and I'd love to see an opportunity for that type of information event in Rochester MN.

The ability to contact someone personally is extreamly valuable to those that have been newly diagnosed or are considering new treatment, Thank You for providing that.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

How did you find this group?

via others involved in Multiple Myeloma and via web search

What, if any, change in your life has this group encouraged?

Help in supporting and reaching out to others!!

When was your last experience with this nonprofit?

2011

Role:  Client Served & Started and Host a Mulitple Myeloma Support group for patients, caregivers and family.