DANNY DID FOUNDATION
June 29, 2011
I dont know where we would be without the Danny Did Foundation. Almost 2 years ago ym daughter was diagnosed with Epilepsy at the age of seven. During our hospital stay and since with her neurologists, we were never told of SUDEP. We had no clue such a real and scary thing existed. Thanks to the Danny Did Foundation we were able to get informed and they even went as far as helping us financially obtain (based on our financial need) an Emfit movement monitor so that we can be alarmed if she has seizures at night. For monthes after she was diagnosed I slept on her floor terrified that she would have a seizure at night without me knowing and since the Danny Did Foundation came into my life, I sleep so much better. Not only have they helped me out in the way in which I just explained but they have warmed ym heart and made me feel like a part of the family. They actually care about me and my daughter and do it all in the name of their sweet boy that they lost. I have recently volunteered for the Foundation, speaking at a local Epilepsy conference and getting the word out on their behalf. I hope to continue to do more volunteer work, it is the least I can do for such an amazing group of people!
I've personally experienced the results of this organization in...
Obtaining an Emfit movement monitor and crucial information ahout my daughters disease.
Ways to make it better...
If I had to make changes to this organization, I would...
do nothing. Not only are they full of knowledge about SUDEP and Epilepsy and nto only did they help me with obtaining an Emfit movement monitor, they made me feel like a part of the family and made sure that my daughter was ok. They care so much for people and that is not something that can be taught.
Client Served & I received and Emfit movement monitor and helpful information from the Danny Did Foundation.