My Nonprofit Reviews
Review for International Wagr Syndrome Association, Hanover , PA, USA
I've been diagnosed with WAGR as a teen and with rare childhood cancer called Wilms Tumor shortly before my 20th birthday. Support I've gotten from IWSA is really great. I attended annual meeting called WAGR Weekend back in 2009 and it was the best time I've had in last 10 years or so. IWSA staff who are volunteers are very helpful and supportive. I love the biannual newsletter called WINGS and on-line community for families.
I've personally experienced the results of this organization in...
support I get when having health issues
If I had to make changes to this organization, I would...
try to get awareness all over the world by involving members in countries outside the USA and ask/order them to do something for IWSA in their community
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