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Mickey Gulli

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ARIZONA MYELOMA NETWORK
June 28, 2011

Arizona Myeloma Network was brought to my attention in January of 2008 when my husband was diagnosed with multiple myeloma, a blood cancer with which we were totally unfamiliar. We didn’t know where to turn locally for up to date information. Barbara and Jack Kavangh have been a blessing to us on so many levels. They have provided us with the resources that we required to make informed decisions about my husband’s care. We were so impressed with the organization that we soon became volunteers with AzMN. Their annual Living with Myeloma Conference brings to the Phoenix area top physicians and researchers who share the newest information available. Sadly, my husband passed away from the disease in April, 2011. I am so proud of the work that AzMN has done for us personally and in our community that I continue to give my time and efforts so that AzMN is able to make resources and advocacy available to others who will be walking the same path.

The Great!

I've personally experienced the results of this organization in...

Being a caregiver myself, I consulted with AzMN in the development of a Caregiver Program. I saw firsthand the difference that information made in my life. Because I was able to implement those lessons, I feel that I did an infinitely better job in caring for my husband and myself in the process.

Ways to make it better...

If I had to make changes to this organization, I would...

like to see more funds available to afford AzMN the ability to continue their important work.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

In the past 3+ years, I have learned that in caring for a loved one with cancer, you cannot stop in the pursuit of new information. I have met incredible physicans from around the country that I would not have had the opportunity to meet within my community. I have been inspired by meeting myeloma survivors who share the story of their journey and courage.

How did this volunteer experience make you feel?

I am proud and grateful that I am able to be a part of an organization that is so keenly aware of the issues involved in dealing with this dreadful disease.

When was your last experience with this nonprofit?

2011

MY ROLE:
Volunteer & I have volunteered in their fund raising projects and in the annual conference. .