It is important to note that neuropathy is actually relative common -- 22% of those over age 65 and more than 50% of those who have had diabetes for 10 yrs. Yet - it is very poorly managed by medical professionals who tend to rely on pharmaceuticals that only mask the pain, and don't address supporting the nerve or supporting safety/patient care (eg loss of balance, de-conditioning, cuts/burns .. all the things that arise as a result of neuropathy). Inability to button, to drive, to use fingers ... all activities that need physical therapy or occupational therapy to re-train the body/brain on how to do things. The NCCNA promotes self-efficacy in a safe and compassionate manner, in a topic that has no other source for info & support.
I've personally experienced the results of this organization in...
Hearing people's gratitude that this organization exists (information and local support). At the hospital I've met patients who were in tears over how little this condition is understood or validated. Even the doctors often say 'oh take gabapentin' (an analgesic that has side effects that many patients don't like). It doesn't address the pain or disability. People see my bumper sticker and will ask me about it in parking lots. Neuropathy is vastly under-treated and mis-understood.
Ways to make it better...
If I had to make changes to this organization, I would...
No changes that I can think of - only to Imitate this chapter's website and its extremely well-focused efforts in other organizations!
How does this organization compare with others in the same sector?
How much of an impact do you think this organization has?
Will you recommend this organization to others?
What is unique about this organization?
The very astute organization o the website with truly useful, practical information. They run on such a small budget and provide such a great service for a condition that is actually fairly common -- 22% of people over age 65 suffer from neuropathy -- and yet so under-treated. I work with cancer non-profits - again a great cause etc.. but there are many out there. There are no other orgs. providing a neuropathy focus.
When was your last experience with this nonprofit?