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LGS Foundation
June 27, 2011

My son was dx was LGS at age 2 and we went over twenty years not knowing others, it is such a terrible disease and no know ones what your going through, it really is so hard to deal with. but the lgs foundation helped me when i needed them most and helped me meet other families. they also keep me updated of news and information thoruhg there website and newsletters. i hope to go to there conference in november it looks fantastic.

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General Member of the Public & i found the lgs foundation online.