From one second to the next, I went from being an extremely physically fit individual, to being defined as a cancer patient with a bleak outlook. Being told that my stomach would be entirely removed was obviously an enormous shock. I knew of partial gastrectomies, but total gastrectomies was new to me.
I decided that information was the key for me. I had to understand what lay ahead of me, so I went surfing!
Unfortunately, I only found negative information in blogs. Information about gastrectomies, and surviving gastrectomies was limited and / or negative. It wasnt overly helpful. Regardless, I went in to the operation in a positive frame of mind!
After my operation, i discovered NSFC. I found this site very useful, and my only regret was that my early searches didnt link me to this site. The best thing for me about NSFC is that it helped me to understand the science behind my illness, and linked me to numerous resources, which have answered most of my questions. In my case, it is clear that the cancer was genetic, and my family now understand exactly why generations of members have been dying young. My experience, linked with the information from NSFC will ensure that I will be the last in a long line of generations to suffer the effects of an advanced stomach cancer.
My brother recently was diagnosed with stage zero cancer and had a total gastrectomy. He was back at work within 5 weeks. This is a smaller layoff than some sporting injuries, and is all due to our family now being aware of the illness, how to search for it, and how to manage symptoms. This can be directly attributed to the support received from Karen and the crew at NSFC.
NSFC hasn't answered all of my questions. It is impossible, as the science is in its infancy. Only time will answer many of these questions, but I am confident that with each new discovery and experience, NSFC will continue to publish it, and will continue to be an important resource for the thousands of people out there like me.
Thank you NSFC!
Cheers from a sunny Austria!
I've personally experienced the results of this organization in...
The key for my family was learning about the genetics behind my cancer. This has already been useful in identifying 8 members of my family who are at an extreme risk of developing Stomach cancer. These family members now have choices. In the past, my family members simply died young!
Ways to make it better...
If I had to make changes to this organization, I would...
The site needs to link in google to other important key words.
How would you describe the help you got from this organization?
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How did you find this group?
Google search on Genetics + stomach cancer.
When was your last experience with this nonprofit?