It has been a blessing over the years, when we went through different stages of my daughter's disease.
It has been my major information resource, a shoulder to cry on, a place where I feel understood.
I've personally experienced the results of this organization in...
Whenever something changed in my daughter's health, I have always got answers from PKIDs, was able to share my worries and doubts, increased my acknowledgment and was ready to meet doctors and ask questions or understand their words.
Ways to make it better...
If I had to make changes to this organization, I would...
I only wish there were a similar organization in my country or PKIDs had time/staff to collect information about other countries, too.
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
How did you find this group?
What, if any, change in your life has this group encouraged?
This group provided the tools which have helped to take very important choices and decisions.
When was your last experience with this nonprofit?