My Nonprofit Reviews

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Mike S.

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5 reviews

Review for International Myeloma Foundation, North Hollywood, CA, USA

Rating: 5 stars  

It has been my honor to act as a member of the Board of Directors of the International Myeloma Foundation for most of the past 20 years.

In that time, it has evolved from a small, underfunded organization to become a primary source of current information and knowledge about myeloma and its management for tens of thousands of myeloma patients and clinicians all around the world -- from New York and Los Angeles to Beijing and Aukland.

Role:  Board Member & Helped the staff to design, build, and develop the programs that the IMF provides in the USA and worldwide. .

Review for Prostate Cancer International, Virginia Beach, VA, USA

Rating: 4 stars  

Prostate Cancer International is a small but active non-profit, founded in 2008, that is primary focused on ensuring that men in general as well as newly diagnosed and long-term prostate cancer patients in America and around the world have access to helpful, current information about the diagnosis and management of one of the most common forms of cancer.

At present our primary activities are on line. We provide a daily news service (The "New" Prostate Cancer InfoLink; see http://prostatecancerinfolink.net), a social network for patients and others to share information (see http://prostatecancerinfolink.ning.com), and we have other longer term goals that will need funding and work.

In addition, Prostate Cancer International is a member of the Prostate Cancer Roundtable (see http://prostatecancerroundtable.net).

Role:  Board Member & Helped to found and manage day-to-day operations of organization.

Review for Prostate Cancer International, Virginia Beach, VA, USA

Rating: 4 stars  

Prostate Cancer International is a small but active non-profit, founded in 2008, that is primary focused on ensuring that men in general as well as newly diagnosed and long-term prostate cancer patients in America and around the world have access to helpful, current information about the diagnosis and management of one of the most common forms of cancer.

At present our primary activities are on line. We provide a daily news service (The "New" Prostate Cancer InfoLink; see http://prostatecancerinfolink.net), a social network for patients and others to share information (see http://prostatecancerinfolink.ning.com), and we have other longer term goals that will need funding and work.

In addition, Prostate Cancer International is a member of the Prostate Cancer Roundtable (see http://prostatecancerroundtable.net).

Role:  Board Member & Helped to found the organization and to run it on a day to day basis.

Review for National Organization for Rare Disorders, Inc., Danbury, CT, USA

Rating: 3 stars  

I am a new Board member of NORD who is absolutely focused on ensuring that NORD ensures its relevance and importance to the patient community and the patient organizations that it serves.

NORD knows that it needs to do more than be the protector of the Orphan Drug Act. It has a new leadership team, and that leadership team has recently developed a new set of advocacy principles that we believe reflect the needs of patients with rare diseases. These include:

-- A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
-- A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives.
-- A social, political, and financial culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders.
-- A regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.

There is a GREAT deal more that we need to do ... and I look forward to helping the leadership and the staff of NORD to make sure we succeed in achieving these new goals.

Role:  Board Member & So far ... I only helped to re-write the new advocacy objectives mentioned above and think about ways to accomplish these..

Review for International Myeloma Foundation, North Hollywood, CA, USA

Rating: 5 stars  

It has been my honor to act as a member of the Board of Directors of the International Myeloma Foundation for most of the past 20 years.

In that time, it has evolved from a small, underfunded organization to become a primary source of current information and knowledge about myeloma and its management for tens of thousands of myeloma patients and clinicians all around the world -- from New York and Los Angeles to Beijing and Aukland.

Role:  Board Member & Helped the staff to design, build, and develop the programs that the IMF provides in the USA and worldwide.