My daughter is 21 years old and was diagnosed with LGS only three years ago. I had never heard of LGS until the day she was diagnosed. I went home and looked on the internet to do research about this disorder and there I found the LGS foundations website. I emailed the President of the foundation, she got back to me the same day and every since that day my life has changed for the better. I know my purpose now. I am always made to feel i am never alone in this battle with LGS. I have been able to get support and give support through the lgs forum and social networks. I am now on the board and will be forever committed to raising awareness ,showing support to lgs families and raising funds for research. This foundation has truly changed my life!!