My Nonprofit Reviews

Lucilu - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Lucilu

204 profile views
1 reviews

Review for Colon Cancer Alliance for Research and Education for Lynch Syndrome, Chicago, IL, USA

Rating: 5 stars  

I became aware of Lynch Syndrome and its' impact on families about two years ago as a friend's family struggled with the loss of a loved one to colon cancer at a young age. Now related family members live with the ominous realization that they too may carry the genetic trait for this syndrome. I support fightlynch.org in its' goal to raise awareness about this genetic disease and to support research for a cure.

I've personally experienced the results of this organization in...

their support to educate families about Lynch Syndrome and the high risk of uterine cancer and colon cancer.

If I had to make changes to this organization, I would...

try to publicize the implications of Lynch Syndrome in susceptible populations and encourage genetic testing. Cancer testing must become a lifelong vigil for individuals with this genetic syndrome.

Role:  Donor & I have not done anything yet but am looking forward to their first fundraiser.