COLON CANCER ALLIANCE FOR RESEARCH AND EDUCATION FOR LYNCH SYNDROME
June 20, 2011
I became aware of Lynch Syndrome and its' impact on families about two years ago as a friend's family struggled with the loss of a loved one to colon cancer at a young age. Now related family members live with the ominous realization that they too may carry the genetic trait for this syndrome. I support fightlynch.org in its' goal to raise awareness about this genetic disease and to support research for a cure.
I've personally experienced the results of this organization in...
their support to educate families about Lynch Syndrome and the high risk of uterine cancer and colon cancer.
Ways to make it better...
If I had to make changes to this organization, I would...
try to publicize the implications of Lynch Syndrome in susceptible populations and encourage genetic testing. Cancer testing must become a lifelong vigil for individuals with this genetic syndrome.
Donor & I have not done anything yet but am looking forward to their first fundraiser.