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Maria Mangicaro

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What I want to do

Promote Participatory Concepts in Mental Health Care

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LAW PROJECT FOR PSYCHIATRIC RIGHTS INC
June 21, 2011

PsychRights is described as a "public interest law firm whose mission is to mount a strategic legal campaign against forced psychiatric drugging and electroshock in the United States akin to what Thurgood Marshall and the NAACP mounted in the 40's and 50's on behalf of African American civil rights."

Forced electroshock therapy must be stopped.

It is a treatment left over from the dark ages of psychiatry.

PsychRights is providing a great service by advocating for human rights of individuals who have been labeled and forced into ineffective, harmful treatment.

The Great!

I've personally experienced the results of this organization in...

There is increasing support and interest in this nonprofit.

Ways to make it better...

If I had to make changes to this organization, I would...

Spread the word.

MY ROLE:
General Member of the Public & I have met the founder and believe in this cause.

SOCIETY FOR PARTICIPATORY MEDICINE
June 20, 2011

As a new member of SPM I have already found tremendous value in this well-managed nonprofit organization and their free online journal, the Journal of Participatory Medicine (JoPM).

Since its inception, the synergistic effect of envisioning an ideal health care system evolving out of the Participatory Medicine movement has contributed to this organization’s growth and sustainability.

If I had to define this stellar nonprofit my statement would be:

"SPM: Advancing best practices and consumer confidence in health care through Participatory Medicine."

Personally, I appreciate the SPM corporate philosophy that implements a “team” approach and decided SPM is an organization well worth volunteering my time to. The volunteer teams are comprised of providers, patients, medical support personnel and other professionals. These individuals have a passion and are making a strong commitment to SPM. They are taking a proactive approach to share their knowledge, experience, expertise and insights to collaborate and put in place mechanisms for organized action planning and development that will further enhance growth and sustainability of SPM.

SPM is not only an incubator for Participatory Medicine to cultivate ideas and accumulate evidence-based research; the organization itself is a model of the success that can be achieved by building provider-patient partnerships.

While SPM is providing a great service to those individuals suffering from many different medical conditions, my personal interest is advocacy for individuals suffering from symptoms of severe mental illness and psychosis.

Patients with severe mental illness experience a higher rate of chronic disease and have a shorter life expectancy than the general population. Many individuals with psychotic symptoms end up homeless, in jail or sentenced to prison. Some, like Jared Loughner, become a threat to society which leads to misconceptions, false beliefs and prejudice. Our prison systems have become human warehouses for those suffering from mental illness creating additional barriers for patients to become empowered.

Currently, the critical need to support mental health care advocacy does not have an effective agenda as organized advocacy groups have greatly divided opinions, send out mixed messages and maintain conflicting agendas.

The widely publicized argument between actor Tom Cruise and Today Show host Matt Lauer is an example of the impasse between advocates holding on to their opposing views without mediating their differences. The battle between advocates creates a lose-lose situation for an overall solution to mental health care.

Discussions and information distributed through the SPM community, along with articles in the JoPM continue to advance my knowledge of evidence-based participatory concepts evolving out of the critical need to improve mental health care. Articles published in the JoPM regarding Psychiatric Advance Directives, Peer Support Specialists and Shared/Collaborative Decision Making equate to concepts providing a win-win situation for mental health consumers to become e-patients and develop recovery strategies.

I feel the Participatory Medicine movement has the potential to contribute large scale, cost-effective improvement within both the mental health care system and the criminal justice system.

Participatory concepts applied to mental health care results in patient empowerment.

In my opinion, a Participatory Model of Mental Health Care gives a voice to the consumer and needs to be a universal platform for all advocates to agree upon and support through SPM membership.

I challenge all mental health advocates, consumers, providers, treatment facilities and educational institutes to learn more about SPM at: http://participatorymedicine.org/

If you can find a reason not to support the purpose and mission of this nonprofit as a individual member for only $30 or a through Corporate Sponsorship for as low as $250, please let me know your reason.

If you are someone who supports giving mental health consumers a voice, please consider the Society for Participatory Medicine a Great Nonprofit and support its overall mission to empower patients equally.


The Great!

I've personally experienced the results of this organization in...

I am a non-medical member of SPM. The editors of the JoPM worked with me to publish a narrative in their journal. I greatly appreciate being an e-patient with a voice.

Ways to make it better...

If I had to make changes to this organization, I would...

This is an organization that is evolving and all are welcome. The evolution process will produce the changes naturally.

MY ROLE:
Volunteer & I am a volunteer on SPM's Corporate Membership and Fundraising Team and their Individual Membership Team, to increase membership and encourage donations/sponsorship. .