November 6, 2013
Global Genes/RARE Project filled a much-needed role in the rare disease community. Previously, many people suffering from rare diseases had no place to turn, until Nicole Boice started this outstanding organization. She has given families hope in many ways: by working with biotech companies to develop better treatments for rare diseases; by advocating in Washington, D.C. to bring awareness and more government funding to rare diseases; and by connecting families with each other so they are no longer alone. Nicole Boice is one-in-a-million and has already made a huge impact with Global Genes. I can't wait to see what she does next for the rare disease community!
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