My Nonprofit Reviews
Review for No Stomach For Cancer, Inc., Madison, WI, USA
The summer of 2009 My youngest son complained of general abdominal discomfort but nothing that could be diagnosis. This went on thru the fall and early winter it just got worse with no one able to diagnosis what was wrong...Then Christmas Eve 2009 I got the worse news I think any mother ever can deal with. Ray was finally diagnosised with gastric cancer then we had to wait till monday to learn what type and what stage it was. That was 4 days away and it felt like a life time. Monday we were told it was signet cell adenocarcinoma of the stomach...any signet cell cancer is the worse to try to treat but we did. It was a long grueling time chemo was the only option because it had already advanced 9STAGE 4) and he had ascites. (fluid build up in abdominal cavity) He fought and lost his battle that August 10, 2010 thru this time it was suggested we have genetic testing done just to see...They drew the blood in February and said they would let us know, My dad had also died of gastic cancer about 10 years earlier. What a surprise in Feb. of 2011 when my daghter in law called to say she finally got Rays genetic test back and it was positive. It took my a few weeks to process this information but then I gathered myself and went to see the genetic testing doctor at our local hospital. So far three of my four adult childeren have recieved their tests and have been negative. I on the other hand am the carrier and came back positive. I have decided that I did not watch my father and son die horrible deaths from this awful disease for nothing ..I am having a gastrectomy next week to show my son Rays beautiful daughters they have nothing to fear if they do prove to be positive as adults and need gastrectomies (they are only 3 and 4 and can not be tested until they are in their late teens unless they get symptomatic) I pray they will find better screening in the next 10 years because without it having a gastrectomy is the logical alternative to prevent gastric cancer. I wISH I could do something to let all doctors be more aware of this killer of our young people. I am a nurse and my work brings across many people with gastric cancer and I wonder how many of them could be EChardin positive.
I've personally experienced the results of this organization in...
It has been a helpful to have this organization to encourage us and a wealth of information that helped lead me to my decision.
If I had to make changes to this organization, I would...
I WISH IT HAD A WIDER VIEWERSHIP SO MORE PEOPLE WOULD BE AWARE OF THIS LINK TO GASTRIC CANCER