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Lisa P.

Lisa P. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
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2 Reviews

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LAM Foundation
August 21, 2012

When I was diagnosed with LAM, I felt so lost and alone.. I did the online research and was filled with dread. I found one foundation dedicated to help people like me, the LAM Foundation, and I don't know where I'd be if not for them. I'm still very sick, on oxygen and in need of transplant -- but these people give me information and hope. They are always no more than an e-mail or a phone call away.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served

LAM Foundation
June 14, 2011

I'm a 25 year old LAM patient from New York named Lisa, facing a double lung transplant because my lungs are beyond saving at less than 30% function. The LAM Foundation has put me in contact with other women like me, and made me feel less alone. Although this disease is rare, serious, and fatal without a cure -- just having a support group and an amazing Foundation to turn to is invaluable. I couldn't imagine going through this by myself. We need to make the general public aware of LAM, because despite our efforts, it is still very largely unknown in the general public.

The Great!

I've personally experienced the results of this organization in...

LAMposium, online, over the phone.

Ways to make it better...

If I had to make changes to this organization, I would...

Somehow make the general public more aware of it's existence.

MY ROLE:
General Member of the Public & I called here when I was diagnosed with LAM.