June 10, 2011
The Wagr Syndrome Association was there when my granddaughter was born. The members have been lights in the darkness for my daughter and son-in-law as they navigate new territory. The medical research that the members of the group are participating in will lead to many new advancements in dealing with whilms tumor and obesity. The members always seem to be there for each other and being small in number they are big on support. It is difficult being a little known genetic disorder to get the same backing as the more well known deseases but the group perseveres and get itself out here when it counts. It's a dedicated, positive and hardworking group that deserves our support.
The Great!
I've personally experienced the results of this organization in...
My granddaughters health
Ways to make it better...
If I had to make changes to this organization, I would...
none
MY ROLE:
General Member of the Public & As much financial support as possible.