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The CFIDS Association of America, Inc.
November 12, 2012

The CFIDS Association proactively encourages ME/CFS researchers with seed grant money. They are fill a niche for small researchers to prove their hypothoses and then to obtain much bigger grants from the NIH.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served

PHOENIX RISING AN NEID CORPORATION
October 31, 2012

Suffering with a poorly understood debilitating neuroimmune illness has wrecked havoc in my life. Phoenix Rising opened up my world to other sufferers just like me. They provided not only much needed information on medical care, treatments, and the latest research, but also a warm and supportive on-line community that reaches out to each other on a daily basis.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

MY ROLE:
Client Served

The CFIDS Association of America, Inc.
June 10, 2011

I have had CFS for 5 years and have went from working in excess of 40 hours per week when healthy, to part-time and last year to totally disabled. I have a lot of time to lie down and think each day and I believe that my best chance of getting well is to support the CFIDS Association.

This organization has and continues to provide funds for innovative research projects that would likely not be done otherwise. One of the projects is even coming close to finding the first biomarkers for this disease!

Biomarkers would help doctors, for the first time, to recognize this illness in their patients. And biomarkers would justify more research grants, especially from the government. But mostly, this horrible illness will come a big step closer to being understood, treated, and possibly cured one day. I am betting my life on the CFIDS Association.

The Great!

I've personally experienced the results of this organization in...

I receive daily updates of all CFS research, have been alerted to actions in Washington DC, and have learned from educational Webinars.

Ways to make it better...

If I had to make changes to this organization, I would...

The only change that I would have made would be to concentrate efforts on just one area. And CFIDS Association has recently done exactly this by changing its focus to just research. I'm hoping our current knowledge will now take a huge leap forward this year and the next.

MY ROLE:
Donor & I am a patient and a donor.