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Malinda Teel

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OVARIAN CANCER NATIONAL ALLIANCE
August 4, 2009

The Ovarian Cancer National Alliance is a well-organized, effective, and much-needed organization, as evidenced by studies that show that the majority of women and half of all doctors are unaware of the symptoms of ovarian cancer. In addition, ovarian cancer has traditionally been a stepchild when it comes to funding for cancer research. OCNA, founded little more than a decade ago, has made great strides toward educating the public and medical professionals about ovarian cancer; informing women with ovarian cancer about all aspects of their disease, including resources; and uniting these women and giving them a voice at the state and national levels.

The Great!

I've personally experienced the results of this organization in...

the passage of Johanna's Law, national legislation that provides for educating the public and medical professionals about gynecological cancers.

Ways to make it better...

If I had to make changes to this organization, I would...

Find a way to involve more women living at a distance from Washington, DC, which is where the national conference takes place. This conference is so energizing, and I think it's the primary way the organization has of building investment in its programs.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the opportunity to learn about cutting-edge ovarian cancer research, and the chance to meet and network with other women with ovarian cancer.

The kinds of staff and volunteers that I met were...

passionate in their desire to prevent women from dying of this disease.

If this organization had 10 million bucks, it could...

For one thing, it could offer regional conferences for women in far-flung states and could offer more scholarships to women who otherwise could not afford to attend.

Ways to make it better...

I had had more role-playing instruction about lobbying my legislators.

In my opinion, the biggest challenges facing this organization are...

1. The fact that the contributions of many volunteers will be disrupted by recurrent treatments and, all too often, death. 2. Competition for limited resources.

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & I have attended four of the annual conferences sponsored by OCNA, and this year participated in their Lobbying Day, visiting the offices of members of Congress to advocate for legislation related to ovarian cancer. I also participate in the OCNA-sponsored.